- If you are a fertile woman, take birth control or don't drink; if you are sexually active.
- FAS is completely preventable.
- FAS kids are very difficult to raise, and often NEVER leave home.
- FAS victims do not get the sympathy and understanding given to other disablities. We are condemned to a lifetime of misunderstanding, hypocritical judgements, being told we are "fine", and that we just need to "try harder". You would not say that to a paralyzed person.
- 1/3 of us are bipolar. Watch for the signs in your loved one, and get them to a psychiatrist if they start having major mood swings.
- Beat it into our heads: you cannot drink. Ever. You cannot drink. Ever. We have horrendous addiction rates, beware anti-anxiety drugs and narcotics as well. My adoptive mother did this and gets tremendous credit.
- People get very upset about the whole term 'Fetal Alcohol Syndrome". Generally women who have children; perhaps they drank while pregnant. You might find the general phrase "brain damage" to be better. I also emphasize my birth mother "Drank a lot" while pregnant.
- Binge drinking is very, very, bad for a developing baby. No alcohol is best, but please don't binge drink.
- Damage can and does occur in all 3 trimesters.
- Get involved in a good faith community. Truly godly people will be more tolerant and accepting of "differences", and the faith foundation will sustain your child through very hard times.
- We have very high rates of depression and attempted suicide.
- Please, don't always focus on what we can't do. Focus on our positive qualities, too. We are very gregarious, friendly, loving, and creative. We are often quite bright and talented.
- Don't push us into learning to drive. We may very well spend our entire life riding the bus. We'll be fine.
- We probably will always need some guidance; please understand we would like to take care of ourselves completely, but often cant.
- If your FAS child is a daughter, focus on teaching abstinence, how to say no, how to spot predators, and if you believe in sex before marriage, at the VERY LEAST get some foolproof birth control.
- You can never teach us enough about social skills, street smarts, boundaries, and how to make people like us. Drills are great, and don't stop training.
- We often have learning disabilities. If we have trouble in school, get us tested and work with us to learn around our differences.
- Don't be afraid to put us in Special Ed. I got straight A's for the first time ever, when I was. They are often more willing and able to work with our learning differences and give us the quiet, non-stimulating environment we crave.
- We will always be delayed socially. Gently correct us as we make blunders, and work on teaching us all those unwritten rules of communication.
- We don't have common sense. Teach us. Even if it seems obvious to you, it has US baffled.
- We often have "meltdowns" when we get overly stimulated. Get us to a quiet place and let us calm down.
Coming to terms with losing my husband and sharing my faith. "A Bible that's falling apart belongs to someone who isn't"
Tuesday, May 3, 2011
Some thoughts on FAS
My opinion only:
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